Skip to main content

LONDON TO PARIS FOR CHILDREN WITH MUSCULAR DYSTROPHY













On May 31 2013, I will be riding London to Paris with Channel 4 News presenters Krishnan Guru-Murthy and Jon Snow and a host of friends and colleagues.
Here's my donation page: https://mydonate.bt.com/fundraisers/fabrizioviani1
The start will be at the Channel 4 HQ in London and we'll be heading to Newhaven, then by ferry to Dieppe, then another leg to Paris.
http://www.youtube.com/watch?v=7G-zzBfGBts
The reason for this ride is to raise money and awareness for the Duchenne Children's Trust: http://www.dc-trust.org/about/about-us/

This type of muscular dystrophy affects children and is 100% fatal. With enough research, within 10 years it could be eradicated. Research costs money.

A former colleague, Emily, founded this Trust with her husband Nick, when their son was diagnosed with Duchenne. These are her words:
“When Eli was diagnosed with Duchenne Muscular Dystrophy we were totally stunned – and devastated beyond words. The doctors gave us no hope. But we threw ourselves into the science of the disease, and discovered that in fact, many in the field of Duchenne believe that we are within reach of a substantial treatment and possible cure for this disease. In the months following his diagnosis we met the world’s leading scientists, academics and researchers in this field. And they are united in their belief that treatments and a cure are within arms reach. And then we realised that we couldn’t just be passive in this situation, just standing by waiting for the good news to trickle in. We want to be doing everything we can to support the research that is going on – and speed up the time it takes for what’s going on in the labs to translate into medicines for our children.Our mission quite simply is to raise money to give to the best global research effort – to fund a treatment or cure in time to save Eli’s life and the hundreds of thousands of other boys like him.”
While the challenge itself is not gruelling for seasoned cyclists, some of the riders coming along don't have a lot of experience in these sort of distances. In any case the challenge is in making people aware of this disease and being able to raise as much money as possible.
Please donate here:

Comments

Post a Comment

Popular posts from this blog

CARLO ROVELLI: WHY PHYSICS NEEDS PHILOSOPHY

A few months ago I started to be interested in Physics. It felt like a natural extension to the questions of the self and who we are in this life. I felt that Philosophy gave me some of the answers, but I needed a deeper understanding of what makes us how we are in an empirical way in order to reconcile the metaphysical counterpart. A handful of books gave me a grounding on the subject, then a dear friend recommended "Seven Brief Lessons on Physics" by Carlo Rovelli. It was a revelation. Only once before a book this small has surprised me quite so much, "Novecento", a short play written by Alessandro Baricco. Baricco managed to squeeze an epic story in 62 pages, a literary feat (the book was later made into a film by Tornatore) transporting an idiosyncratic story into a journey through time and seas. In the same way, Rovelli takes on the incredibly complex world of Physics to unravel the most salient parts in a mere 79 pages. From General Relativity to Quantum M...
Post a Comment
Read more

AN OLYMPIC EFFORT

When the Olympic cycling road race and TT race routes were announced I was extremely excited. I live bang in the middle of both. One of the most important races in cycling was going to be ridden near my house. Television screens would be filled with images of roads I'm familiar with, the pros will be riding my commute to work AND some of my cycling club runs' routes (Kingston Wheelers).
4 comments
Read more

WIGGLE DRAGON RIDE 2012

In the graphics department at Channel4News we're all into cycling, sometimes train together at lunchtime, so five of us plus a friend who joined us there, decided to enter the Wiggle Dragon Ride in South Wales. This is a sportive, a timed road cycling event with over 4,000 participants from all over the country and beyond. I did this event a few years back, but it was a lot shorter and not so much climbing.
1 comment
Read more